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Policy Manual: Investigating Inadequate Health Care for Disabled Infants, Study notes of Ethics

The procedures and policies of the vermont department for children and families in responding to reports of inadequate health care for infants with disabilities. It covers the definition of inadequate health care, commencing an investigation, the role of a pediatric consultant, professional staffing, substantiating neglect, and religious exemptions.

What you will learn

  • What are the special procedures for responding to reports of inadequate health care for infants with disabilities?
  • What are the exceptions to the requirement to provide treatment for infants with disabilities?

Typology: Study notes

2021/2022

Uploaded on 09/12/2022

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Vermont Department For Children And Families
Family Services Division
Family Services Policy Manual
53
Chapter:
Intake and Assessment
Page 1 of 3
Subject:
Investigating Reports of Inadequate Health
Care of Infants with Disabilities
Replaces: Policy 53, dated 1/8/99
Approved
Cynthia K. Walcott, Deputy Commissioner
Effective: 12/1/06
Purpose
Reports alleging inadequate health care of infants with disabilities are accepted as
mandated under 33 VSA, Chapter 49 and by federal statute. This policy establishes special
procedures to respond to these reports, including reports of withholding of
medically-indicated treatment for infants with life-threatening conditions.
Policy
Definition of Inadequate Health Care
Inadequate health care of infants with disabilities includes failure to respond to an infant's
life-threatening conditions by providing treatment (including appropriate nutrition,
hydration, and medication), which in the treating physician's reasonable medical judgment,
will be most likely to be effective in ameliorating or correcting all such conditions.
Exceptions to the requirement to provide treatment (but not the requirement to provide
appropriate nutrition, hydration, or medication) may be made only in cases in which:
the infant is chronically and irreversibly comatose;
the provision of such treatment would merely prolong dying or not be effective in
ameliorating or correcting all of the infant's life-threatening conditions, or otherwise be
futile in terms of the survival of the infant; or
the provision of such treatment would be virtually futile in terms of the survival of the infant and
the treatment itself under such circumstances would be inhumane.
Commencing an Investigation
Investigations of reports of inadequate health care of an infant with disabilities will
commence immediately by contacting the child protection director or child safety
assessment manager and the designated contact person at the hospital at which the infant is
being treated.
Pediatric Consultant
The division contracts with a pediatric consultant to assist in the assessment of the
situation. The role of the pediatric consultant is to:
determine whether or not the attending physician or parents have been offered and/or
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Vermont Department For Children And Families

Family Services Policy Manual

Chapter: Intake and Assessment Page 1 of 3 Subject: Investigating Reports of Inadequate Health Care of Infants with Disabilities

Replaces: Policy 53, dated 1/8/

Approved Cynthia K. Walcott, Deputy Commissioner Effective: 12/1/

Purpose

Reports alleging inadequate health care of infants with disabilities are accepted as mandated under 33 VSA, Chapter 49 and by federal statute. This policy establishes special procedures to respond to these reports, including reports of withholding of medically-indicated treatment for infants with life-threatening conditions.

Policy

Definition of Inadequate Health Care

Inadequate health care of infants with disabilities includes failure to respond to an infant's life-threatening conditions by providing treatment (including appropriate nutrition, hydration, and medication), which in the treating physician's reasonable medical judgment, will be most likely to be effective in ameliorating or correcting all such conditions. Exceptions to the requirement to provide treatment (but not the requirement to provide appropriate nutrition, hydration, or medication) may be made only in cases in which:

  • the infant is chronically and irreversibly comatose;
  • the provision of such treatment would merely prolong dying or not be effective in ameliorating or correcting all of the infant's life-threatening conditions, or otherwise be futile in terms of the survival of the infant; or
  • the provision of such treatment would be virtually futile in terms of the survival of the infant and the treatment itself under such circumstances would be inhumane.

Commencing an Investigation

Investigations of reports of inadequate health care of an infant with disabilities will commence immediately by contacting the child protection director or child safety assessment manager and the designated contact person at the hospital at which the infant is being treated.

Pediatric Consultant

The division contracts with a pediatric consultant to assist in the assessment of the situation. The role of the pediatric consultant is to:

  • determine whether or not the attending physician or parents have been offered and/or

Vermont Department For Children And Families

Family Services Policy Manual

Chapter: Intake and Assessment Page 2 of 3 Subject: Investigating Reports of Inadequate Health Care of Infants with Disabilities

Replaces: Policy 53, dated 1/8/

Approved Cynthia K. Walcott, Deputy Commissioner Effective: 12/1/

voluntarily consulted with the hospital’s ethics committee if such a committee exists, or with the pediatric consultant;

  • if that consultation has occurred, determine whether or not the infant is receiving the prescribed treatment and nourishment; and,
  • participate in staffings necessary to determine an appropriate course of action, including the necessity for filing a petition under Chapter 55.

Professional Staffing

If the infant's parents refuse to consult with or follow recommendations of the pediatric consultant, the following persons (at a minimum) will staff the situation (by telephone, if necessary):

  • district director and other appropriate district staff, as determined by the director;
  • child protection director or child safety assessment manager;
  • assistant attorney general for Family Services; and,
  • pediatric consultant.

The staffing will result in a recommendation to the deputy commissioner, who will decide the final course of action.

Substantiating Neglect

Neglect of an infant with disabilities will be substantiated if:

  • recommendations of the hospital ethics committee, approved by the pediatric consultant, are not being followed; or,
  • recommendations of the pediatric consultant are not being followed.

If the pediatric consultant and the ethics committee disagree, the division will follow the recommendations of the pediatric consultant.

Religious Exemption

Neglect will not be substantiated if the parents refuse to follow the recommendation due to the legitimate practice of their religious beliefs. Under those circumstances, court action may be initiated under Chapter 55, if necessary to assure the child’s well-being.